Authors: Lonneke M. A. Wijnhoven; José A. E. Custers; Linda Kwakkenbos; Judith B. Prins · Research

How Do Adjustment Disorder Symptoms Change Over Time in Breast Cancer Survivors?

A study examining how adjustment disorder symptoms fluctuate in breast cancer survivors during the first five years after treatment

Source: Wijnhoven, L. M. A., Custers, J. A. E., Kwakkenbos, L., & Prins, J. B. (2022). Trajectories of adjustment disorder symptoms in post‑treatment breast cancer survivors. Supportive Care in Cancer, 30, 3521-3530. https://doi.org/10.1007/s00520-022-06806-z

What you need to know

  • Adjustment disorder symptoms commonly fluctuate over time in breast cancer survivors rather than following a stable pattern
  • Around one-third of survivors experience ongoing adjustment difficulties in the years following treatment
  • Younger age, lower ability to handle daily activities, and personality traits like neuroticism are risk factors for adjustment problems

Understanding Adjustment After Breast Cancer

Completing breast cancer treatment is often celebrated as a major milestone. However, for many survivors, the journey doesn’t end there. The transition from active treatment to survivorship can bring its own set of emotional and psychological challenges. When these challenges become overwhelming, some people may develop what mental health professionals call an “adjustment disorder” - a condition where someone experiences more distress than would typically be expected in response to a stressful life event.

What the Research Examined

This study followed breast cancer survivors for one year to understand how adjustment disorder symptoms changed over time. The researchers tracked symptoms in survivors who were up to five years post-treatment using regular psychological assessments. They wanted to identify different patterns or “trajectories” of adjustment and understand what factors might predict who is more likely to struggle with ongoing adjustment issues.

Key Findings About Symptom Patterns

Rather than finding that most people either adjusted well or poorly, the research revealed that adjustment difficulties often fluctuated over time. The study identified three main patterns:

  • About 55-60% of survivors maintained good psychological adjustment with minimal symptoms
  • Roughly one-third experienced ongoing moderate adjustment difficulties
  • A smaller group (about 7-8%) showed more severe and increasing psychological symptoms

This challenges the traditional view that adjustment disorders follow a straightforward path of either recovery or chronic symptoms. The reality appears more dynamic, with many survivors experiencing ups and downs in their adjustment over time.

Risk Factors for Adjustment Difficulties

The research identified several factors that made ongoing adjustment problems more likely:

  • Younger age
  • Greater difficulty managing daily activities
  • Higher levels of neuroticism (tendency to experience negative emotions)
  • Lower levels of optimism
  • Larger gap between desired and received social support

What This Means for You

If you’re a breast cancer survivor experiencing emotional difficulties, know that fluctuating feelings are common and normal. Having good days and bad days doesn’t mean you’re failing at recovery. The research suggests several practical steps that may help:

  • Don’t hesitate to seek support even years after treatment
  • Build a strong social support network
  • Work with healthcare providers to manage daily activities
  • Consider screening for adjustment difficulties at follow-up appointments
  • Practice stress management and coping techniques

Conclusions

  • Adjustment challenges after breast cancer treatment often fluctuate rather than following a predictable pattern
  • Regular emotional health check-ins may be valuable even years after treatment completion
  • Support services should be readily available to survivors, with special attention to those with identified risk factors
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